For Individuals

Resources

Resources for People with Parkinson’s Disease (PD)

There are many resources available for people with Parkinson's disease (PD) and their families. Here's an overview of some key resources you may find useful:

The Parkinson's Foundation offers a bilingual helpline (1-800-4PD-INFO) to answer questions and provide local referrals.

Patients are encouraged to see a movement disorder specialist for specialized PD care.

When possible, patients are encouraged to be evaluated by a movement disorder specialist for specialized care. Often movement disorder centers offer comprehensive care and patient resources.

We encourage people with PD, family members, and caregivers to check out additional resources listed below to access the support and information they need to navigate life with Parkinson's disease.

General PD Education

Parkinson’s Disease Overview:
- https://pdnexus.org/individuals/
Parkinson’s 360
- https://www.michaeljfox.org/parkinsons-360
Understanding Parkinson's by the Parkinson's Foundation:
- https://www.parkinson.org/understanding-parkinsons
Michael J. Fox Foundation's monthly educational webinars on various topics:
- https://www.michaeljfox.org/webinars

Genetic Counseling

American College of Medical Genetics clinic finder:
- https://clinics.acmg.net/
National Society of Genetic Counselors directory:
- https://findageneticcounselor.nsgc.org/
Remote commercial genetic counseling services:
- https://informeddna.com/
- https://www.genomemedical.com/individuals/#schedule

Community Resources

PMD Alliance support group information
- https://www.pmdalliance.org/
The PD Movers - Living and Thriving with Parkinson's Disease in our Black and African American Communities:
- https://heyzine.com/flip-book/a5d24ed7a2.html#page/1

Spanish Resources

EP Salud en Casa (Webinars to live well with Parkinson's):
- https://www.parkinson.org/espanol/recursos-y-apoyo/ep-salud-en-casa
Library of all Spanish Resources by the Parkinson's Foundation:
- https://www.parkinson.org/espanol/recursos-y-apoyo
Spanish Podcast: Substantial Matters
- https://www.parkinson.org/espanol/recursos-y-apoyo/podcast
Guía Parkinson 360:
- https://www.michaeljfox.org/conociendo-la-enfermedad-de-parkinson

Specific Studies

Parkinson’s Progression Markers Initiative (PPMI) (Fox Foundation):
- https://mysmelltest.org/
PD GENEration study (Parkinson’s Foundation):
- https://www.parkinson.org/advancing-research/our-research/pdgeneration

Other Research Information and Studies

Michael J. Fox Foundation's guide on navigating clinical trials:
- https://www.michaeljfox.org/sites/default/files/media/document/011519_PDEC_PATIENT_GUIDE_CAN_WEB_linked.pdf
Fox Trial Finder:
- https://www.michaeljfox.org/trial-finder
U.S. website and database of research studies:
- https://clinicaltrials.gov/

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Resources for People with Parkinson's Disease

Disclaimer: Our IU team does not necessarily endorse the resources provided. First discuss any questions or concerns related to these resources with your doctor.